De izda. a dcha.: Juan, José Luis y Magdalena con la camiseta amarilla del Día Internacional de la Osteogénesis Imperfecta (enfermedad huesos de cristal)
Recibimos la visita de José Luis Argoitia, padre de un niño con osteogénesis imperfecta (OI) y vocal de AHUCE (Asociación Huesos de Cristal de España); Magdalena Lorenzo (madre de una niña con síndrome de Grouchy) y Juan Cabeza, enfermo de Crohn y miembro de ALCER (Asociación para la Lucha Contra las Enfermedades de Riñón). Con ellos hablamos de las enfermedades de baja prevalencia y del Día Mundial de la OI, el cual se celebrará en Torrelavega el próximo 5 de mayo.
We were visited by Jose Luis Argoitia, father of a child with osteogenesis imperfecta (OI) and member of AHUCE (Crystal Bone Association of Spain); Magdalena Lorenzo (mother of a girl with Grouchy syndrome) and Juan Cabeza, who suffers from Crohn’s disease and is member of ALCER (asociation for the fight against kidney disease).
With them we talked about the diseases of low prevalence and about the Wishbone Day, which is held in Torrelavega next 5 May.
We were visited by Jose Luis Argoitia, father of a child with osteogenesis imperfecta (OI) and member of AHUCE (Crystal Bone Association of Spain); Magdalena Lorenzo (mother of a girl with Grouchy syndrome) and Juan Cabeza, who suffers from Crohn’s disease and is member of ALCER (asociation for the fight against kidney disease).
With them we talked about the diseases of low prevalence and about the Wishbone Day, which is held in Torrelavega next 5 May.
Escucha la entrevista / Listen to the interview (Spanish)
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